"MY MOTTO"

"MY MOTTO"
LIFE...AND THE THINGS IT BRINGS

Saturday, April 30, 2011

Closing Casinos in Mississippi due to flooding?

IS IT TRUE...ARE THEY GOING TO CLOSE THE CASINOS IN GOOD OLE MISSISSIPPI?? WELL, MY SOURCES SAY THAT THEY ARE, BUT HAVE YET TO GET A CONFIRMATION. THE TIME OVERALL OF CLOSING, IS ALSO YET TO BE DECIDED, IF WATER CRESTS TOO HIGH, THEN THEY WILL CLOSE AND I AM SURE IT WILL BE FOR AT LEAST A WEEK OR MORE DUE TO WATER SLOWLY RECEADING  DURING THE FOLLOWING WEEK

THIS WAS JUST A LITTLE OLE CREEK...NOW, IT IS LOOKING MORE LIKE A RIVER
THE WATERS OF MISOURI.ARE HEADED THIS WAY. YES...THEY HAVE OPENED THE FLOOD GATES TOO in missouri AND WHEN THE WATER GETS HERE, I AM SURE SOME DESPARATE MEASURES WILL BE TAKEN AND THE CASINOS WILL HAVE TO CLOSE THEIR DOORS. 


THIS IS MY SON, SHANE, THAT IS REALLY WORRYING ME STANDING IN THAT RUSHING WATER. I TOLD HIM THAT HE BETTER BE EXTRA CAREFUL COMING BACK HOME, SINCE HE WAS STUCK IN MO...UNTIL THE WATER CAME DOWN. HE IS HOME NOW, BUT I ALSO WAS CONCERNED @ THE WATER IN THE ROADS. EVERYONE NEEDS TO PAY EXTRA ATTENTION TO WATER ON THE ROAD, IT CAN BE VERY DECEIVING AND LOOK LIKE IT IS NOT DEEP AT ALL...THEN, AFTER YOU GET THERE IT IS TOOO LATE..ESPECIALLY, IF THERE IS A HOLE WHERE THE HIGHWAY HAS JUST CAVED IN. IT CAN HAPPEN BECAUSE I SAW IT MYSELF ON THE NEWS WHERE THERE WAS NO HIGHWAY AND A GIRL JUST HAPPENED TO NOTICE IT BEFORE SHE WENT BARRELING DOWN INTO IT. BE SAFE ALL,IT IS ALWAYS BEST "TO BE SAFE, THAN SORRY."


THIS IS JUST A LITTLE PIC THAT I THOUGHT I'D THROW IN, BECAUSE I DON'T HAVE ANY PICTURES OF HER ANYWHERE ON MY SITE AS OF YET AND FELT IT WAS TIME. IN THE PIC, IS MY SON, SHANE & HIS GF, SARAH. SHE WAS NICE ENOUGH TO HAVE THE PICS..THANKS, SARAH






IMPORTANT....IMPORTANT...IMPORTANT...IMPORTANT...IMPORTANT


YES..THE CASINOS ARE GOING TO CLOSE. DO YOU KNOW HOW I KNOW????
MY SOURCES COME STRAIGHT FROM THE HORSES MOUTH*(NOT JUST GUESSING HERE!!!)...MY HUSBAND'S EMPLOYER*(one of casinos in MS).
MY HUSBAND HAS WORKED AT THE CASINOS FOR A LONG ENOUGH TIME, THAT HE HAS FINALLY GOING TO GET THAT LONG AWAITED TIME OFF..FOR HIMSELF (been doing this a long time..14 yrs. or more) AND THE LETTER HE RECEIVED FROM WORK DEFINATELY SAYS THAT AFTER TONIGHT AT 2:00 AM, THE DOORS WILL BE CLOSED AND IT WILL BE FOR THREE WEEKS (as for what I understand). 


MY HUBBY,GARY & OUR SON,BRYAN



I WILL REPEAT:  THE DOORS OF THE CASINOS WILL BE CLOSED AT 2:00 AM SATURDAY MORNING. 

YEAH....:)))))) MY HUSBAND WILL BE OFF WORK FOR 3 WEEKS(and Thank God he is getting paid for it) AND BOY ARE WE GOING TO GET SOME THINGS DONE AROUND THIS HOUSE...YEAH!!!!!!!...AND ...AND HE WILL GET TO REST 4 A GOOD WELL-DESERVED BREAK. I AM SO EXCITED THAT HE WILL BE HOME, TO SPEND TIME WITH OUR SON, BRYAN.
I AM SURE HE WILL GET SOME GOLFING IN AND THAT WILL BE GREAT. I AM EXCITED 4 HIM...:))))
I WILL ALSO GET ALL OF MY YARD DONE...FINISHED AND THE INSIDE OF MY HOUSE WILL GET DONE...YEAH, DONE..COMPLETELY DONE. I HAVE HAD A FEW THINGS THAT HAVE NEEDED DONE 4 A LONG TIME. GARY, ALWAYS WORKS, SO IT MAKES IT HARD TO EVER FINISH SOME THINGS. NOW, BRYAN & SHANES ROOM WILL BE UPGRADED TO ULTRA KEWL AND MY BATHROOM WILL BE COMPLETED...FINALLY.

OHH...THE PLANS I HAVE 4 MY BOYS...GARY, BRYAN, SHANE & MY DAD-(I won't let my dad work as hard as the others)...I will make sure of that he will only do the mininal requirement and that is going to be hardly nothing..For one thing, I am trying 2 slow him down a bit (he is 73 after all).
                        MY DAD..I CALL HIM...RAZZ AND OUR KITTEN SNICKY SNOP




I THANK YOU LORD for us being blessed to be alive. For the 13 in AR that didn't make it during the horrific storm that came through that caused all of the water problems, in the first place. I am truly sorry and feel for their families. I will keep you all in my prayers. TO ALL, BE SAFE OUT THERE..



I HAVE TO SAY ONE MORE THING @ THE CASINOS THAT MY MOM HEARD...SHE SAID THAT SHE HEARD ON TV THAT THE CASINOS IN MS. WERE GOING TO CLOSE THEIR DOORS...WAIT...INDEFINATELY...NOOO, REALLY????? THAT CAN'T BE TRUE, CAN IT? I WILL BE DOING SOME RESEARCH ON THAT ONE AND GET BACK TO YOU, BUT THAT WOULD MEAN A MOVE FOR US...YES, WE WOULD PROBABLY MOVE TO OREGON...YEA, THAT WOULD BE WHERE WE WOULD GO. MY HUSBAND'S BROTHER LIVES IN SEATLE, WA. AND SO MUCH OF MY FAMILY LIVES IN OREGON..SO, WE WOULD BE CLOSE TO ALL THE PEOPLE WE LOVE AND THAT LOVE US..PERFECT!!!

THERE IS ONLY ONE TO CONVINCE TO MOVE AND I HOPE THAT WON'T BE A PROBLEM. OF COURSE, SHANE, I THINK WOULD LOVE TO MOVE TO OREGON. HE WOULD LOVE TO BE CLOSE TO ALL OF OUR FAMILY...I THINK. I KNOW, THAT WE THOROUGHLY ENJOYED THE VACATION, THAT WE SPENT THERE BACK IN JULY OF '05. WE CLIMBED UP THE HIGH SAND BARS THAT THEY HAVE AND CARVED OUR NAMES IN THE SAND. WE HAD A TOUGH TIME GETTING TO THE TOP, BUT IT WAS WORTH IT JUST TO KNOW, THAT WHEN WE RETURNED BACK TO ARKANSAS, THAT IT WOULD BE THERE FOR A LONG TIME. IT WAS SHANE,BRYAN & ME. I WILL NEVER FORGET THAT DAY, THAT IS FOR SURE.( I just wish I had some pics of that to show you).

I WILL UPDATE YOU ON ANY AND EVERY PIECE OF INFORMATION ON THE CASINO THAT I RECEIVE AND THE ONE THING THAT IS TRUE AND THAT IS GOING TO HAPPEN...NO MATTER WHAT...IS THAT THE DOORS OF THE CASINO ARE CLOSING NOW, DUE TO THE WATER LEVEL RISING, AS WE SPEEK AND THAT IS JUST GREAT 4 ME..:))))

I MEAN, I USED TO GO AND PLAY, BACK IN THE DAY(years ago), AND KNOW A LOT OF YOU WILL BE DISAPOINTED IN THIS INFORMATION OF THEIR CLOSING...JUST TEMPORARILY, BUT I TRULY BELEIVE THE CASINOS ARE HERE TO STAY...THEIR NOT GOING ANYWHERE...THAT I KNOW OF YET. 
THERE IS ONLY ONE THING LEFT TO DO...AND THAT IS TO PLAY THOSE CASINOS THAT ARE ONLINE..:))))) BETTER THAN NOTHING, RIGHT? HEY, THEY ARE FUN AND YOU DON'T LOSE ANY $$$$$$$$$$,  THAT WAY. IT'S just as fun...SO, GET to playing at the CASINO,....ONLINE NEAR YOU..
So, just play those FREE ONLINE SLOTS,TABLES AND ALL SORTS OF FUN..and REMEMBER,YOU DON'T HAVE TO WORRY @ LOSING YOUR $$$$$$$$$$ ..HAHA..and to me, I don't feel guilty playing because I know, I am not taking money from my family or gambling..that way, I know I am not disapointing The Lord in ANY WAY...GOD BLESS < 3 K..:)))

BE SAFE AND WATCH 4 THE WATER LEVEL..:))))) <3

SOMETHING WE ALL NEED TO THINK @ EVERYDAY...THE LORD!!!

 
JUST A SHORT:
I THOUGTH THAT LANCE SAID A MOUTHFUL WITH THIS ONE, BUT HE ALWAYS HAS SOMETHING GREAT TO SAY..AND I LOVE READING ANYTHING THE LORD HAS TO SAY...:)))) <3 K
 
‎"These six things the Lord hates, indeed, seven are an abomination to Him: A proud look [the spirit that makes one overestimate himself and underestimate others], a lying tongue, hands that shed innocent blood, A heart that manufactures wicked thoughts and plans, feet that are swift in running to evil, A false witness who breathes out lies..., and he who sows discord among his brethren."-Prov. 6:16-19

Sunday, April 24, 2011

OMG...COULD THIS BE THE ANSWER???

                                                                                                                       
I HAVE BEEN SUFFERING FOR SOOO LONG AND DO YOU MEAN TO TELL ME THAT IT COULD ALL COME DOWN TO A LITTLE TICK BITE? I MUST SAY, I DID FIND A TICK ON ME BACK @ 2 YRS. AGO, BUT NEVER COULD I HAVE IMAGINED THIS COULD BE A POSSIBILITY!!! 
 GETTING TESTED AGAIN, THIS TIME I AM GOING TO SEE A LYME SPECIALIST...ASAP!!!!!!!!!!!!

THIS IS A PICTURE OF HAPPINESS..OF A TIME WHEN I WORKED IN NASHVILLE, when my life and the people I love's life was much less complicated and I felt like... I was living then, but for now, life is so hard 4 me everyday and 4 my loved ones.( in pic., is Chely Wright ,Gordon Adamski & me)

Could it be possible that this is it? I was tested for it, but have heard that there are 6 total tests to prove possitive for Lyme. I only had one or two of the 6..so, going back for more..yay. We must keep on fighting, if we are ever going to get well. FIGHT, I TELL YA..:)) <3 Karen

Friday, April 22, 2011

JUST TO BE PRECAUTIONARY FOR OUR KIDS SAKE, ALWAYS CHECK THEM OVER AND ASK QUESTIONS TO MAKE SURE THAT THERE IS NOTHING SERIOUSLY GOING ON ANYWHERE...MIND OR BODY

Re: Swollen lymphnode on right side of neck
(THE POST WAS ONLY 4 PRECAUTIONARY MEASURES-I DIDN'T KNOW IT WAS A LYMPHOMA SITE OR FORUM--SO,DON'T THINK HE HAS ANYTHING SERIOUS LIKE THAT,BUT IT WAS JUST POSTED TO SEE IF ANYONE ELSE HAS SEEN ANY OF THESE KNOTS THAT LOOK LIKE, OBVIOUSLY SOMETHING TO BE CONCERNED OVER, BUT "LORD WILLING" IS ONLY SOMETHING MINOR) *(As I always say, "It is best to be informed, than uniformed.)

This is my boy when he was 11yrs. old. He is a sweet kid and helps his mom a lot. I know he is gonna be just fine. It just concerned me when I saw the knots and you never just igmore anything.


Bryan, my youngest, has two nodes on his neck that stand out and I am a worried and concerned parent. He had a low-necked shirt on and I could see the knots on the side of his neck and I asked him if they hurt and he said that they didn't. Just, we try so hard to do what is right 4 our children and hope and pray, that The Lord will hold them tight and take good care of them, especially if they are far away or even close at home...:) <3 K
--------------------------------------------------------------------------------
Life keeps you guessing and God keeps you strong. Maybe, you have been a busy mom during your lifetime. Your path in motherhood has been different than what you anticipated, but still, is such a blessing.Thankfully, you do have God to lean on and be inspired by to keep going. Always, take it just one day at a time. But, if you aren't a mother, then you truly cannot understand the deep-pitted feeling when your child is ill in any kind of way, even if it is just a cold...we worry. I think and hope it's just a simple infetion of some kind, if you can say that any infection would be considered simple. Besides, the node might go down after a round of anti-biotics and I am keeping a close eye on it. I do wishi the doctor will have news 4 us @ it. It is so scary when you find a place like that on your child. We go to the doctor in the morning, just so we can make sure it is nothing to worry @. I mean, the swollen area could go down, but the node underneath could still be just as big and I wouldn't know it. So, to me, it is always better to be safe than sorry. He hasn't complained, or been showing signs of feeling sick. Just complaining that the place, where it is, is just so sensitive and it hurts to be touched on the knots.
Our job as mother is to protect our children from anyone and anything. When we get thrown a curveball, we have to be strong so our children don't get worried and afraid. take care <3 K
__________________
If you open the door even a little bit - the devil will fling it open. Keep it closed with prayer.
Please, just in case, it doesn't hurt to send a prayer or two...thanks, maybe an over worrying mom..:)  <3 Karen
Coment if you have a situation

Monday, April 18, 2011

     I have a lot of things on my mind...always. For one thing, I worry 4 my parents who have taken care of me for so long and how they worry so much @ my health..and @ me.
     Tell me, what do you do,if you couldn't seem to get well and had tried so hard to do so? I just know, we have traveled all around and ridden that road,my mom and dad, ALWAYS driving the way. We have tried and it seems that we find, it's just another dead end. I am so tired of dead ends and I know,my parents, they are too. They do so much 4 me, all the times, they have taken me to doctors and even mom comes over,as bad as she feels, to rub my legs and feet with lotion,and I am so greatful 4 such love as they have and have shown me, all my life.
     I can say that my mom and dad, are good people, have good hearts and live Godly lives, in which, has been the inspiration 4 me to stay close to The Lord. Both of them, try dilligently to get me to go to Church,still, in the shape I am in,as if in denial of me being so ill. if I could go, I would.."Lord Knows", but most of the time, I can't move and that is THE GOD HONEST TRUTH.. it really hurts me not to be able to go or to move for that matter. It also hurts me to just lay here and feel helpless and sometimes, it can make you feel hopeless. It just @ drives me crazy...sometimes. IT is tough, that I don't get to go and do anything (at least mom and dad put a birdbath outside my window, so I can watch the birds and I like that)...
     THIS IS IT, my life..and there are times I feel, I have let The Lord down...but then again, I know, He understands and knows just what I am going through and it seems to me, that people just don't realize or understand the complexity of what I am going through. SO, it just makes it hard and it always seems to fall, always on my mom and dads shoulders and that does make me so angry, at times and I don't understand why it always has to be them, but we live and then we learn, later, that some people just don't try hard enough. We see that, but make excuses for them.
     I do know that my sons do understand, especially Bryan, for he is here and there for me, all the time and he sees his mom in pain and I know it hurts. It hurts me,that it is hard on him and I hate that..If, I had to see my mom in pain, it would hurt me too. Even though, it is hard to know that your mom is down and don't seem to be getting better, just know, that I am a Christian and you will see me again someday soon..BUT ONLY, IF you follow The Lord, then, we will meet again...in Heaven...when those doors open and I am there with my arms open, just like our Lord's Arms are open for us..IF we would just let Him in..and not fight IT..WE have to fight, for what is right..Then, when that day comes He'll take us home.
     I want my boys to know, that mom is trying, trying to get well, and to be well. You know, that I push myself hard to get through each and everyday. I hate it 4 my boys, mom is really trying to get better, but I don't know what else to do(of course, if I would quit smoking), that would help me tremendously..I know that. IT'S HARD, but, Don't give up on me, for I will never give up..never. Although,I have been to doctors to find out, what all is wrong with me and of course, they have given me a list of things that are wrong with me, BUT there has to be something, SOMETHING that they are missing, that can get me OUT OF THIS BED..Here's me still praying.."Lord Willing"..I will get beter...:))
     I love my family and God loves them all, for at least, they do try..at least, they do try. I know, deep down that they are worried 2, but still, I hope they see me in their hearts, up and feeling alive again SOON, ME too..:))) <3

                                MY WONDERFUL PARENTS, WHO I LOVE AND ADORE





     I must say,for a long time now, I have been disgusted @ what ALL my sons have endured. It is, and seems to be,not fair, but we all have learned that life is not fair and we ALL have our own crosses 2 bear. We just have to rise above the negative and dwell on the positive..and that is all I have to say on that subject, for it hurts too bad 2 talk @ IT, since my life seems to be so hard... hard 2 bear at times and I juat pray 4 our lives... first to be right with God..THAT IS MOST IMPTORTANT.
      I try to stay positive, but sometimes life can really make that hard to do and that is when The Lord said to give it 2 Him..I've had to give HIM a lot, because it was just too much 4 me 2 bear. You know, it is hard for me to see how my life has changed. I can't even make it to their door now,which is only 50ft. away.
     I know, I don't ask them to rub my feet or cook so much food, but they do it anyway..because I am their only one. It is hard on them to accept that I may never get out of this bed. OH LORD, please help me get out of this bed and find me a way to get my health back and some of my life..
     I know that the only way for me to be truly happy is to live my life 4 U, ALWAYS and I am doing the best I can, LORD and know that You are there..ALWAYS 4 me.
You know, I am not able to go to Church or anywhere else, much 4 that matter,in the state of health that I am in, makes it hard for others to understand. It is just hard for someone to put themselves into someone elses shoes.. I am not going to lie and say that I am not afraid, for I am very afraid of all of this. I am not worried @ dying or should I say, where I'll go afterwards:)))..we all have to... one day, I have already talked with The Lord and He knows all @ me.
     I am not well and I know that there is many,many symptoms that can't be explained. I know there is something seriously wrong with me,because I have been suffering for a long time...getting over 5 yrs. now . It is just that a child doesn't suppose to go b4 their parents. That is hard and it puts a lump in my throat because I want to be around for a long long time, and I never ever want my parents to suffer. For I know, everyone knows that when you saw my mom, you saw me. We were always together and done everything and my dad was not far behind....
     GOD BLESS ALL <3 Karen
     GOD BESS ALL and I pray that your life has peace..always..<3 Karen

Thursday, April 14, 2011

     I had a series of three ESI's *(Epidural Steroid Injections) and the third one hit on something that made me jump and flail (sp?) on the table like I was struck and electrocuted. After 5 yrs.,I have become bedridden and am only 45. I know there must be something that can be done. I am willing to have surgery due to the excruciating pain that I experience on a daily basis. It is very hard to try and live a life when you can't walk or stand long and have two teenage boys to keep up with.
     Most of the time I do research on all of my symptoms, but it has come to no avail, since the amount of symptoms are endless and so are the possibilities, it seems. It is too hard, sometimes,to live a life, that I never dreamed could happen to a person. I never ever thought that a person could go through and endure such agony in their life, but now know that it can happen and does..everyday. I hate that I have found that it seems I am going to be stuck here in this bed and not doing the things that I love so much. No one realizes how much it takes away from a person's life. They are able to work, and I am talking @ work of any kind. I can't even take the clothes out of the washing machine. I have moments and they are few to where I can do a little and that is very little. I pay for it too, but I love to work and do creative things like draw or take pictures. I was a photographer in Jr.High and High School and have so many photos, but I guess that is a good thing for now I can share a lot with the people in my life. I am thankful to the people in my life for they inspire me so much to keep pushing to get well. I have almost given up so many times and feel so depressed that I am stuck here, but maybe The Lord had a reason..you know, HE has a reason 4 everything that He does and if it is here that He wants me..then here it is. It is hard to accept when you have been put in a place that is dark,lonely and sometimes feels abadoned.


This is some of the most recent MRI's that I have had and you can see the actual screws poking  into my spinal cord and believe me, I FEEL them..but, I am wondering @ where I was hit by the ESI's.. I suppose to have that film, but instead of my NL sending that one to me, he sent an old one from a NL before him, that I had seen and on his report(which was written stated that I had a small area of tangled vessels and connected to a dominant vessel. IT DOESN'T SOUND 2 GOOD, but what are they doing to help me..??? Absolutely NOTHING, actually just basically dropped me. THEY just let me go. I don't understand. WHY? WHAT DID I DO? I AM NOT WELL and THEY are just going to let me go home and DIE or I should say, FEEL LIKE I AM DYING. I SHOULD AT LEAST BE TOLD WHAT IS WRONG AND WHAT I NEED TO DO TO GET BETTER..DON'T YOU THINK?





     I have always been a driven active person and desparately need my life back in some shape or form...better than it is now. I pray that there is some way that I can stop this pain that is so undescribable and horrid. There must be some way to live better than this, because to me this is not living. Yeah, I may be able to watch a lot of TV and lay around, in whic everyone thinks that it is a luxury. It may well be a blessing to be able to lay, but it is not what I had in mind 4 my future.I miss being active like I was and the pain has taken so much out of me that I don't have much time to enjoy being with my boys, who need their mom.
     If anyone knows of how a person who has been struck, maybe in the nerve fibers or close enough to my spinal cord to cause such misery in one body, can be repaired in some way or any way. Maybe, I could have the nerve burned or something. If anyone knows of HELP out there, I am right HERE..I don't think I am going anywhere...NO, I am right here,stuck in this misery I call my life, but try my best to keep The Lord right by my side, so He, at least can comfort me..and He does so much.
     I am in this little town of AR and am so desparate in getting my life back. I am still fighting for my life and it is so sad when you ask a friend to help and the only reply they have for you is..All, I do is play piano...Yeah, I know that, but where is the heart..where is the sympathy or empathy that I need so bad and when I reached out to this person, I felt so disgustingly desperate, but I couldn't help it for I felt that this person could help me..if he wanted to...REALLY.
     I used to sing and dance in Nashville,TN. The place that holds a lot of wonderful memories and happiness,but IT is gone now. I use to play the guitar, an ovation, but now it just sits, in its case and is gathering dust. I write songs of love and inspiration..IT is very thereaputic to me and helps me rid a lot of anxiety and depression.
     I have been DX with: DDD of Cervical,Lumbar, & Hip/Joint,Spondylosis,Myofascial Pain Syndrome,Spinal Stenosis,CM(Chiari Malformation 6.5mm),VA(Venous Angioma),although I have seen new information that was added). I have a small area of tangled vessels in the left cerebullar hemisphere  and that there is one dominant vessel extending from this. When I read this, it scared me to death and the pain that I have been experiencing at the base of my skull in the back of my neck feels like I am dying. I have been swelling at the base of my skull and that is a scary, scary feeling of helplessness and it can make you have a feeling of hopelessness as well. I do feel like I could be having an aneurysm or something. I feel like I am fighting for my life,yet I am getting NO WHERE. I shouldn't be having this and don't understand why or how this happened to me. IT had to be where they hit me in the back with the ESI because the only other culprit is my surgery that I had in my neck. IT was an ACD & F spinal diskectomy of C5-C6..I am sure you have heard all of this b4, but I know there is someone out there that can help me..THERE HAS TO BE a way to get me well again..Are you the one? Can you help me? I do know that you wouldn't want to be where I am, think if we switched places, what would you do to get help? It is like H*** on Earth and that is the truth.
     I am thankful to my PCP, who has taken care of me these last 2 yrs. I don't know what I would have done,for he has held me together like I was glued and am greatful and I do have faith in his knowledge and abilities. If it had not been 4 him, I would have probably already lost my mind from taking all of this PAIN. He is a fine doc and I believe he does care or he wouldn't have helped me and I do know he believes and understands me.You know who you are and I don't know if you want me to use your name, but I thank you so much Dr. W...<3 Thanks so much, <3 Karen...suffering in AR

Monday, April 11, 2011

DO DOCTORS CARE OR IS IT THERE POCKETS BEING FULL WHAT THEY'RE WORRIED @!

THIS IS WHAT I HAVE AND THE DOCTORS ARE DOING ABSOLUTELY NOTHING...just sent me home.
What kind of Dr.'s do we have anymore...do they even care? I wonder..

Cerebral Cavernous Malformation (Cavernous Angioma, Cavernous Hemangioma)

Overview

A cerebral cavernous malformation is an abnormal group of small blood vessels that may be found in the brain and spinal cord. These lesions can be quiet for many years; however, they can manifest themselves by bleeding. Cerebral cavernous malformations may cause serious neurological symptoms—even death—as a result of severe bleeding or pressure on the brain or nerves. Seizures, headaches, paralysis, and cerebral hemorrhage are common symptoms. Seizures may be controlled with anti-epileptic drugs. Surgery may be necessary to remove a cerebral cavernous malformation that is causing symptoms or that suffered multiple bleedings.
I FOUND IN A REPORT THAT I DON'T THINK I WAS SUPPOSE TO FIND, BUT AFTER I READ IT, I WAS BLOWN AWAY..IT STATES,"THERE IS A SMALL TANGLED AREA OF VESSELS IN THE LEFT CEREBULLAR HEMISPHERE."
I AM SO ANGERED..BECAUSE IT EVEN SAYS THE WORD LESION..AND EMPTY SELLA.,. I EVEN HAVE A CHIARI MALFORMATION TOO(6.5 , to be exact and anything over 5 usually gives you neurological deficits)..THEY FAILED TO TELL ME A LOT OF THINGS..SOOO,,
IF, I WIND UP A STATISTIC, I WANT SOMEONE TO FIND OUT WHY AND WHAT IT WAS THAT KILLED ME.. I KNOW IT SOUNDS MORBID, BUT YOU KNOW, I AM NOT WELL AND IT IS NOT FAIR THAT THEY, THE DOCS, PUT YOU OUT IN THE COLD AND JUST SAY, "IT IS OUT OF MY AREA OF EXPERTISE"...and that is it.
WELL!!!! FIND SOMEONE WHO HAS AN AREA OF EXPERTISE AND TELL ME WHAT I NEED TO DO TO GET BETTER..PLEASE..
<3 Karen
 
THIS IS WHEN LIFE WAS GOOD ...b4 my surgery..

Sunday, April 10, 2011

SO many posts on MED HELP website

This is the most recent post that I have made to MEDHELP, going on possibly 100 or more..:)))
 
Have to warn you just in case what I wrote below is a messed up jumble of words..I didn't change a thing..left it like it was..so, there could be some mis-spelled words and some things might not even make sense, since I was tired when I loaded it up and didn't feel the greatest either..God Bless..<3 <3 <3 K
 
To: Ken_PA
I must say that I am at my wits end. I have been to NL and NS until I am blue in the face and just have a list of things wrong with me, but I feel there is something serious going on and I can't give up. I can't breath now as we speak. I have been having this pain at the base of my skull at the back of my neck. I do have a lump that seems to be growing downwards under my jawline. AT the time of the ultrasound, I am not going to lie, my mouth was just a going. It is a small town we live in and the guy that did my ultrasound was a good friend and our kids were not getting along and I had to tell the reason for why I felt like I did, but in the meantime could've jepordized the procedure. Our kids got to being friends again, but I am still worried @ this lump. I did however talk with my friend again later and noticed a scar from his ear to his chin or maybe lower..I asked him @ it and he said that his parotid had to come out. I figure he would have noticed that in me as well, that is if my mouth didn't ruin it. Do you think I should have another one? I do in a way. It is kind of sore on that area and as I said b4 I hurt at the back of my neck and feel it has something to do with the report that I wasn't suppose to run across..IT said, "There is a small tangled area of vessels in the left cerebellar hemisphere inferiorly w/no associated abnormal FLAIR signal or evidence of vasogenic edema. There is one dominent vessel extending from this." That is all I got out of a garbled mess that was suppose to have been a film of my Thoracic and my Brain & C-spine, but I got this..all I could see at first were a bunch of #'s, but then looked at all of it..saw my name and then this. It has really resonated that there is something there, but why didn't they tell me anything @ any of this. The doc(NL) told me that he found a venous angioma, probably something I was born with it is what he told me.
I am so sorry 4 just unloading it all there..LoL I do have a way of explaining things in detail, but I thought that was a good thing, but sometimes IT IS JUST TOO MUCH..I know..
They did use the word "Lesion" in the end of that group of words. WHY don't they tell u this stuff and at least send u to someone who can help u. I am suffering Ken..is it? I am everywhere because I am sooooo tired of suffering and just want a life. I know there has got to be someone out there that hears me..U know what I mean. I did get ur attention and I think I really got ur attention...LOL..I am sorry. I was counting all of my posts the other day and I think it is definately over 50..maybe 100..I am just so desperate in my search 2 find a doc or at least what kind do I need to see, WHAT would u recommend 4 me..seriously..I don't know. I live in a one hick town down in AR..and there is no MRI machine at our hospital..it is drying up too..ohh, I am just scared I am going to be a statistic and I want to live..got a lot to do yet b4 I die..I have two wonderful teenage boys..they definately  need their mom to help them get through this life.
My body aches, burns in sheets on just different areas, cramping and tightening up of all of my muscles..YEAH, that is the biggy besides all of the other pain I am experiencing. I am baffling docs.. I just think I have too much going on, BUT IT IS happening. I am so sick of a couple of my docs thought I was symptomatic.. I know what that means..just another way of saying it is all in my head.. NO..OH, I have gone and vented now..sawy.:)'
I just seem to have so much pain in all of my muscles like my lactic acid just stays ON ALL day...like I am lifting weights all day, but I can't do a thing that is it. I try..so much do I try to get out of this BED and make myself and sometimes it feels tolerable, but it doesn't take long( I think the most time I get is around an hour,if I am lucky or that back will burn like FIRE) I have other spots that SCARE me..MY BRAIN HURTS,,,HOW IS THAT POSSIBLE??? I feel like someone pushes there thumb into my skull sometimes and that hurts. I hurt on my left temple and have swollen to where it feels like a golf-ball is up there.
I called my NL one time because I thought I was having a stroke because my jaw bone was being pulled down to my collarbone. The whole left side of my face was completely NUMB all the way down my shoulder and my arm...IT was SOO creepy. I feel that whatever this is..is serious,but not getting any HELP..DO u know of anyone or who I could see that would be in around Memphis,TN or Little Rock,AR..I am close to those big cities..I also love Jonesboro,AR since my son lives there going to College..would love a visit..You take care and thank you 4 reading all @ my life..I left a lot out..actually..:))) <3 K