"MY MOTTO"

"MY MOTTO"
LIFE...AND THE THINGS IT BRINGS

Saturday, March 17, 2012

NOW I SEE THE WHOLE PICTURE!!!

NOW, I CAN UNDERSTAND WHAT HAS STARTED THIS BALL TO ROLLING, AFTER RESEARCHING INTO IT ALL OF THESE YEARS.
I HAVE BEEN IN SO MUCH PAIN, FOR SO LONG...AND I KNOW, IT IS HARD FOR SOME TO REALLY UNDERSTAND THE DEGREE OF PAIN, BUT I THANK THOSE THAT DO...AND FOR THOSE, WHO ARE TRYING TO UNDERSTAND WHAT I HAVE BEEN GOING THROUGH...THE PAST 6YRS.
IT HAS BEEN SO HARD ON ME THAT THERE IS NO WAY TO EXPLAIN IT ALL...AND I HAVE MISSED SO MUCH TIME WITH MY FAMILY...AND THAT I BARELY REMEMBER MYSELF, WHO I WAS B4 ALL OF THIS CAME ON ME.
YES, IT HAS BEEN THAT HARD AND IT IS SO HARD...TO EVEN PUT INTO WORDS...JUST WHAT I HAVE EXPERIENCED,  BUT I DO KNOW THAT SOME OF U...U CAN UNDERSTAND...AND U DO FEEL MY PAIN. THEREFORE, U CAN RELATE TO EVERYTHING THAT I AM SAYING.
                                                                      Felt great here...when Gary and I were dating.:))



FOR THOSE OF U WHO ARE SUFFERING, I PRAY THAT THE LORD TRULY BLESSES U AND TAKEs AWAY UR PAIN.:))<3

I HAVE BEEN SO ILL, FOR SO LONG....TRYING TO GET BACK ON MY FEET. I HAVE TRIED SO HARD, TO FIND THE ANSWERS...TO GET MY LIFE BACK...

I HAVE DONE HAD NECK SURGERY,(C5-C6 spinal diskectomy)...AND SO MUCH PAIN. I WAS BITTEN BY A TIC BACK IN '08 AND HAVE THOUGHT THAT I HAVE HAD LYME. WELL, EVEN THOUGH IT HASN'T BEEN PROVEN...YET. SOMETIMES, IT TAKES SEVERAL TEST TO FIND IT. IT IS SO ELUSIVE AND HARD TO DETECT. AFTER, HAVING 3 TESTS ALREADY THAT WERE NEGATIVE, I JUST THOUGHT THAT I DIDN'T HAVE IT. WELL, SINCE I HAVE ALL OF THE SYMPTOMS...THEY ARE TESTING ME AGAIN. hmmmm?? DOES THAT MEAN THAT I COULD STILL HAVE IT??...OR ARE THE TESTS THAT ARE GIVEN THAT WRONG OR INCLUSIVE? I WONDER WHY LYME IS SUCH AN EPIDEMIC NOW. THEY SAY, IT IS MORE PREVALENT THAN AIDS.


...I WASN'T GETTING VERY FAR, ANOTHER WORDS...AFTER 6 YEARS...UNTIL I PUT TWO AND TWO TOGETHER.
I'VE HAD TO TRY AND RESEARCH MY SYMPTOMS MYSELF, SINCE IT SEEMS LIKE IT IS TAKING FOREVER TO GET A DIAGNOSIS and THERE ARE SO MANY ILLNESSES, DISEASES AND SYNDROMES THAT A PERSON HAS TO TAKE CHARGE THESE DAYS OR WE WILL NEVER GET DIAGNOSED! THEY COULD JUST FALL INTO THE CRACKS AND NEVER GET DIAGNOSED..
THIS ALL STARTED WITH AN AUTOMOBILE ACCIDENT BACK IN '95 AND WHEN MY HEAD HIT THE TOP OF THAT CAR, MY FRIEND WAS DRIVING, I DEVELOPED AN INTENSE HEADACHE, BUT THAT WAS ALL. SO, I THOUGHT IT WAS OVER, BUT NO, IT WAS ONLY THE BEGINNING.
I CAN SAY NOW... TO NEVER....NEVER UNDERESTIMATE WHAT CAN HAPPEN, IF U HAVE A HEAD INJURY...OR THE REPERCUSIONS THAT IT CAN MAKE ON UR LIFE.

I FELT SO BAD THAT NIGHT, AFTER MY HEAD HIT THE ROOF OF THAT CAR...THAT ALL I WANTED WAS TO GO HOME AND TRY TO GET RID OF IT, BY RESTING. AFTER THAT, I NEVER DID GO TO THE ER, I JUST FELT BETTER...SO IT WAS FORGOTTEN. 

I DIDN'T KNOW WHAT TO DO, BECAUSE I HAD NEVER REALLY HAD ANYTHING HAPPEN TO ME LIKE THAT.  I NEVER KNEW, FOR A LONG TIME...REALLY WHAT HAD HAPPENED TO MY NECK, AFTER MY HEAD HIT THE ROOF OF THAT CAR.
ALL I KNEW, WAS THAT MY HEAD HURT AND I DIDN'T FEEL RIGHT, BUT THE HEADACHE WENT AWAY .
I DIDN'T GO TO ER...LIKE, I SHOULD HAVE. 

HOWEVER, WHEN I DID GO TO THE CHIROPRACTOR AND GOT IT LOOKED INTO, THEY WEREN'T REALLY WORRIED  SO MUCH @ WHERE I HIT MY HEAD!...THEY WERE MORE CONCERNED @ ALL THAT HAD COME, FROM HITTING MY HEAD. THEY WERE MORE WORRIED HOW IT AFFECTED MY VERTEBREA, IN MY NECK. 
I CAN UNDERSTAND, SINCE EVERYTHING HAD BEEN PUSHED DOWNWARD...FROM THAT WRECK.  ONE CHIROPRATOR IN MS., HAD TOLD ME THAT I HAD LOST THE CURVE IN MY NECK AND THAT MY SHOULDERS.. THE DOCTOR QUOTED."WELL, THEY ARE ALL MESSED UP".:P

SO, I AT THE BEGINNING, WHEN IT HAPPENED, I HAD SOME TREATMENTS AND ADJUSTMENTS AND WENT RIGHT BACK INTO LIVING MY NORMAL LIFE.
I GUESS, THEY FELT EVERYTHING WAS FINE WITH ME.
I WENT ON AND NEVER THOUGHT OF IT AGAIN...NOT UNTIL YEARS LATER, WHEN IT RESURFACED. IT WASN'T BAD, AT FIRST...I JUST GOT TO WHERE I COULDN'T SLEEP AT NIGHT. I COULDN'T FIND A PLACE TO REST MY HEAD AND I WAS WORKING 60+ HRS. A WEEK.  IT WAS TOUGH, BUT I WAS A WORKER, ONE WHO LOVED TO WORK, BUT IT DID MAKE IT HARD NOT GETTING ENOUGH SLEEP.
HECK, I WISH THAT WAS ALL I WENT THROUGH NOW...

ALL THAT I CAN SAY IS...THAT IT HAS CAUSED ME AND MY FAMILY SO MUCH GRIEF.
FOR ANYONE ELSE THAT GETS HIT ON THE HEAD...PLEASE, MAKE SURE THAT U GET THAT ISSUE ADDRESSED THEN!! A HEAD INJURY IS NOTHING TO FOOL AROUND WITH AND IT CAUSES OTHER PROBLEMS LATER ON...DOWN THE ROAD. DON'T WAIT...UNTIL THE BOTTOM FALLS OUT OF UR LIFE...LATER, LIKE MINE HAS DONE.
KEY, IS TO ALWAYS FIND THE RIGHT DOC, FOR WHAT THE PROBLEM IS. RESEARCH AND MAKE SURE U HAVE FOUND THE APPROPRIATE DOCTOR, TO TREAT THE  RIGHT AREA OF THE BODY THAT IS WHERE THE PROBLEM LIES...AND ONE...THAT WILL GET U ALL BETTER, WITHOUT SUFFERING FOR YEARS WITH IT!! U WANT TO GET TO THE ROOT OF THE PROBLEM...NOT JUST TREAT THE SYMPTOMS...TRUST ME!!

U DEFINITELY WANT TO GET ANY KIND OF HEAD INJURY RULED OUT. IF U HAVE BEEN HIT ON THE HEAD, TO BEGIN WITH. IF, U EXPERIENCE OTHER SYMPTOMS....ON TOP OF A HEADACHE...DON'T WAIT.
U COULD HAVE INJURED SOMETHING SIGNIFICANT AND NOT EVEN KNOWN IT. 
 
IF U BEGIN TO EXPERIENCE AN INTENSE ACHING, CRAMPING, BURNING, THROBBING...AND PAIN THAT NEVER WANTS TO GO AWAY KIND OF PAIN..THEN, UR SOUNDING LIKE ME...AND THAT IS NOT GOOD.:((

THE HEAD INJURY CAUSED ALL OF THIS!
WHAT I AM EXPERIENCING NOW ...WON'T QUIT OR THE MEDICATIONS, THEY HAVE PRESCRIBED...WON'T HARDLY PHASE IT...AND I HAVE A WHOLE NEW SET OF PROBLEMS...IT SEEMS, ALMOST EVERYDAY
EVERYDAY IS A CHALLENGE, FOR I NEVER KNOW WHAT IS GOING TO HIT ME...
THIS HAS TO BE RESOLVED AND TAKEN CARE OF, FOR I AM SO WEIRY WITH IT...
IT'S JUST THAT I HAVE SO MANY SYMPTOMS...AND IT IS SO HARD...IT IS JUST SO HARD, BUT IF, I DIDN'T HAVE THE LORD...I DON'T THINK THAT I WOULD BE HERE...SERIOUSLY, IT IS THAT BAD...AND HE MAKES ME GET THROUGH IT.:D

I KNOW THAT THERE ARE SOME...THAT ARE HAVING A HARD TIME UNDERSTANDING JUST WHAT ALL IT ENTAILS...OR JUST HOW BAD, IT IS!!
THE SYMPTOMS ARE LIKE THIS...THE MORE THAT I MOVE...THE MORE THAT I HURT!! SERIOUSLY, IF I MOVE...I PAY FOR IT AND THAT MAKES IT PRETTY HARD TO GET ANYTHING DONE. ESPECIALLY, IF THERE IS SO MUCH THAT NEEDS TO BE DONE...AND TO A WOMAN, IF HER SURROUNDINGS ARE A MESS, THEN...SHE FEELS MESSY TOO.:P
WELL, I MUST ADMIT THAT I DO HAVE A WONDERFUL HUBBY THAT WORKS SO HARD AND EVEN, AFTER A HARD DAY...HE WILL COME IN AND DO WHAT NEEDS TO BE DONE. HE WASHES DISHES, CLOTHES...AND HE HAS EVEN FIXED MY BATHS FOR ME. HE KNOWS THAT IT IS HARD FOR ME TO DO ANYTHING AND I THANK THE LORD, FOR HIM EVERYDAY AND I LOVE HIM SO MUCH!!:D
I HAVE TO SAY THAT MY MOM AND DAD DO SO MUCH FOR ME TOO. SHE HAS COME OVER AND RUBBED MY LEGS WITH LOTION AND MADE ME LAUGH. OH, DID I MENTION THAT SHE COOKS SO MUCH!! I TRY AND TELL HER TO TAKE IT EASY, BUT SHE JUST WON'T LISTEN AND SHE REALLY NEEDS TO TAKE IT EASY SOME. SHE CAN OVER-DO IT EASILY AND HAVE ONE OF THOSE EPISODES THAT SHE DOES.
I HAD TO EEEK MYSELF OVER TO HER HOUSE TO CALM HER DOWN AND HELP HER BREATH. OF COURSE, HERE LATELY...SHE HAS BEEN LETTING THINGS GET TO HER...AND IT GET HER UPSET. SHE HASN'T FELT WELL AND I AM PRAYING THAT SHE WILL GET WELL AND THAT DAD WILL BE ALRIGHT TOO. HE WORKS SO HARD, FOR HIS AGE. HE IS 74 AND HE IS STILL A WORKIN'. I SHOULD BE WELL, SO I CAN TAKE CARE OF THEM. IT IS SO HARD ON ME NOT TO BE ABLE TO MAKE SURE THAT THEY ARE DOING ALRIGHT. I AM SO STUCK IN THE BED SICK...NOW, THAT IS DOES WORRY ME SOME...I HAVE TO ADMIT. I DON'T THINK THAT I COULD HANDLE IT RIGHT NOW, IF THERE WERE SOME KIND OF EMERGENCY. I REALLY DON'T THINK THAT I COULD HANDLE IT..NO, I SERIOUSLY DON'T. THE LORD IS TAKING GOOD CARE OF THEM, FOR ME. HE KNOWS, RIGHT NOW THAT I AM DOWN SICK WITH SOMETHING AND IT COULD BE A NUMBER OF THINGS AND I AM HAVING TO STICK IT OUT...WAIT IT OUT...TOUGH IT OUT, UNTIL THEY FIND EXACTLY WHAT IT IS THAT HAS ME...
BRYAN, MY YOUNGEST...DOES SO MUCH FOR ME TOO. HE KEEPS ME COMPANY, MAKES ME LAUGH, IRRITATES ME(hehe..some:)...BUT, I KNOW THAT HE HAS KEPT ME GOING TOO. HE HAS ENCOURAGED ME SO MUCH TO KEEP FIGHTING. SO HAS MY SHANE, HE...JUST KNOWING THAT HE IS DOING ALRIGHT...HAS GOT ME THROUGH...AND THE TIMES THAT WE DIDN'T HAVE CONTACT...I USUALLY FELT WORSE, BECAUSE I HAD HIM ON MY MIND...HE IS LEAVING NEXT MONTH FOR BASIC







I WOULD ADVISE NOT TO WAIT, AT ALL IF U HAVE A HEAD INJURY, FOR U NEVER KNOW WHAT CAN COME OUT OF IT.
NEVER JUST THINK....AH, I JUST GOT A HEADACHE AND IT IS OVER NOW...EVERYTHING IS ALRIGHT.  NOO, MAKE ABSOLUTELY SURE, AT THE BEGINNING...SO, THINGS ARE MADE ALRIGHT THEN AND NOT HAVE TO WAIT SO LONG, UNTIL U FIND THE "ORIGINAL" CULPRIT.  MAKE SURE....IF, UR SUFFERING THAT BAD, TO GO BACK AND FIGURE OUT HOW IT ALL STARTED!!

POST THAT I FOUND TO EXPLAIN THE PERCENTAGE OF HOW MANY HEAD INJURIES ARE OUT THERE AND THE CONNECTION BETWEEN HEAD INJURIES AND OTHER AUTOIMMUNE RESPONSES THAT COME WITH A HEAD INJURY:

Signs and symptoms






Unequal pupil size is potentially a sign of a serious brain injury.[32]
Symptoms are dependent on the type of TBI (diffuse or focal) and the part of the brain that is affected.[33] Unconsciousness tends to last longer for people with injuries on the left side of the brain than for those with injuries on the right.[7] Symptoms are also dependent on the injury's severity. With mild TBI, the patient may remain conscious or may lose consciousness for a few seconds or minutes.[34] Other symptoms of mild TBI include headache, vomiting, nausea, lack of motor coordination, dizziness, difficulty balancing,[35] lightheadedness, blurred vision or tired eyes, ringing in the ears, bad taste in the mouth, fatigue or lethargy, and changes in sleep patterns.[34] Cognitive and emotional symptoms include behavioral or mood changes, confusion, and trouble with memory, concentration, attention, or thinking.[34] Mild TBI symptoms may also be present in moderate and severe injuries.[34]
A person with a moderate or severe TBI may have a headache that does not go away, repeated vomiting or nausea, convulsions, an inability to awaken, dilation of one or both pupils, slurred speech, aphasia (word-finding difficulties), dysarthria (muscle weakness that causes disordered speech), weakness or numbness in the limbs, loss of coordination, confusion, restlessness, or agitation.[34] Common long-term symptoms of moderate to severe TBI are changes in appropriate social behavior, deficits in social judgment, and cognitive changes, especially problems with sustained attention, processing speed, and executive functioning.[27][36][37][38][39] Alexithymia, a deficiency in identifying, understanding, processing, and describing emotions occurs in 60.9% of individuals with TBI.[40] Cognitive and social deficits have long-term consequences for the daily lives of people with moderate to severe TBI, but can be improved with appropriate rehabilitation.[39][41][42][43]
When the pressure within the skull (intracranial pressure, abbreviated ICP) rises too high, it can be deadly.[44] Signs of increased ICP include decreasing level of consciousness, paralysis or weakness on one side of the body, and a blown pupil, one that fails to constrict in response to light or is slow to do so.[44] Cushing's triad, a slow heart rate with high blood pressure and respiratory depression is a classic manifestation of significantly raised ICP.[3] Anisocoria, unequal pupil size, is another sign of serious TBI.[32] Abnormal posturing, a characteristic positioning of the limbs caused by severe diffuse injury or high ICP, is an ominous sign.[3]
Small children with moderate to severe TBI may have some of these symptoms but have difficulty communicating them.[45] Other signs seen in young children include persistent crying, inability to be consoled, listlessness, refusal to nurse or eat,[45] and irritability



The most common causes of TBI in the U.S. include violence, transportation accidents, construction, and sports.[35][46] Motor bikes are major causes, increasing in significance in developing countries as other causes reduce.[47] The estimates that between 1.6 and 3.8 million traumatic brain injuries each year are a result of sports and recreation activities in the US.[48] In children aged two to four, falls are the most common cause of TBI, while in older children traffic accidents compete with falls for this position.[49] TBI is the third most common injury to result from child abuse.[50] Abuse causes 19% of cases of pediatric brain trauma, and the death rate is higher among these cases.



POST OF A CONCERNED MOM
Are you saying that you have symptoms of PTSD, and you believe it was triggered, or caused by adrenal insufficiency that is the result of head trauma?
I do believe that traumatic stress can be a result of existing adrenal insufficiency. My son had a lot of stress, prior to being diagnosed with secondary adrenal insufficiency ( as a result of a pituitary cyst ). He has been on hydrocortisone for almost 2 years, and rarely feels the type of stress he had before the diagnosis.
It is interesting to me that my son was also hit on the head, accidently, with a golf club, about 4 months before he started having severe light sensitivity and what I now know were symptoms of adrenal insufficiency ( this was two years before his pituitary diagnosis). However, nothing was seen on his MRI to indicate that he had ever had a head injury. (he never lost consciousness, just had a small goose egg for awhile).
Anyway, I agree that it is possible.


Regarding your son, you can have a mild traumatic brain injury, that causes havoc, without losing consciousness. MRI's are notably poor in diagnosis and many health professionals miss it. There exists alot of information about HPA axis function (hypothalamus/pituitary/adrenal) and head injury. Of interest to you, especially hypopituitary problems. There's enormous controversy surrounding head injuries, especially closed head and tbi's that have little visible injury. I maintain that my low cortisol levels were a red flagg to insufficiency resulting from head injury. My thesis, is that head injuries can go undiagnosed or misdiagnosed for "just"ptsd (DSM IV) emotional disorder. Cortisol treatment and its evaluation is also gaining attention given the soldiers who are returning with head injurys, ptsd and low cortisol levels. The New York Times front page (1-08-09) reveals just the tip of the ice berg. Go on line to read. It hinted that while the military doesn't recognize ptsd as a physical problem vs a mental health problem, it reflects that it just not me that has alot of questions. Many soldiers being labled with DSM IV diagnoses (PTSD) may be recieving psychoactive drugs, that furthers their declince and further obscures a correct diagnosis. I will get well, even if I have to take a whole platoon with me. If you have resources that may help, please contact me. Thanks for your story.


Your son was lucky, with your help. He was vulnerable to a diagnosis of anxiety and or depression, if you want to follow the neurotransmiter/chemical imbalance theory. The pituitary cyst would have gone undiagnosed and SSRI's or tryciclics, a popular psychiatric treatment, would have been prescribed, followed by a worsening debility. Professional journals are now recognizing this. It depends which professional journal, endocrinolgy or psychiatric. I almost got buried in the wasteland of psychotropic medication, when in fact, I needed hormonal treatment. Professionally, I worked with adolescents for almost 30 yrs. and it opens up a plethora of diagnostic and treatment questions. I have much to learn!
Your son's example is very interstesting. How was your son's condition diagnosed?
Yes, you are right about doctors leaning toward a diagnosis of anxiety, and prescribing anti- depressants and anti- psychotic drugs, instead of pursuing a case for other physical causes. I encountered this very early in my son's "journey through hell", but I knew there HAD to be an underlying physical cause for his behavior, so i waived the drug recommendations.


Oh gosh. How was my son diagnosed? Do you want the short answer, or the whole, long painful story! I'm happy to tell you the whole thing, if you're really interested. It is a wonder, when I think about it, how it all came about.
But the short answer is, I am a mother, with a strong instinct to protect her "cub". I sat at the computer (thank God for the internet!) for months, researching symptoms and medical papers, reading, reading ,reading. Then, doctor after doctor, with almost no help. Finally, I guessed what might be the cause of his illness, so I sort of diagnosed him myself, with the help of a very concerned endocrinologist.
Perhaps, if you want the whole story, I should pm you, so I don't take up this whole thread! My son is 13 years old and still has many problems (partly i think, because he won't comply with some of his treatment), but I am hopeful we will get through this without too much lasting trauma (both mental and physical).
Oh, and his sweet guinea pig just died unexpectedly. My poor boy!



Without any hesitation, I would like to talk with you or what's this "pm" me? Given my severe debiblity, advocating for myself has been very difficult, as I live alone and have no family in Minnesota. It's been over 5 yrs., since my bicycle accident, and doctors have been brutal to me, some dear friends have left, and I lost my career of 30 yrs. in social services.

Cognitively I have improved, on good days, but I am sure I have a mild-moderate traumatic brain injury that's resulted in hypopituitarism...with more than one hormanal problem. In 2005 my osteopath discovered I had very, very low adrenals. But, no one saw the connection between head trauma and endocrine system problem. This past week or so I decided to dig even though years ago I suggested seeing an endocrinologist but was told there wasn't any good ones in the midwest. I excitedly shared your story.

YES, I'd like to hear your story fully, learn about your doctor, and of the best diagnostic tests. I went to Mayo Clinic, 12-04 and they questioned why I was there and didn't believe my fatigue. The recommended 3 weeks of daily/3hrs. p.t. I went home and collapsed for 8 months and then tried work again, only to collapse again. My resignation goes in next month.

Thanks for sharing. Can you help? A doctor's name, advice on diagnostic tests and..... more about the wealth of your experience. You saved your son's future! There's a story here!


Are you taking replacement hormones for your hypopituitarism; hydrocortisone, Thyroxine, growth hormone, vasopressin, anything? You must see an endocrinologist for testing if you have hypopituitarism. Any endocrinologist is a place to start, then look for a better one if you're not happy with your treatment.
Hang on. There's lots to hope for here.



I think I'll go to the best dr., without considering travel stress. The clock is running.
I'll have to pack good pajamas, for public if, things get excaberated. A real fear of hitting
bottom.
Thank you!!



THESE POST REALLY GOT ME TO WONDERING AND DOING MORE RESEARCH, SO THAT I CAN STAY ON TOP OF THIS! A PERSON CAN GET HYPOPITUITARISM, FROM A HEAD INJURY?  YEP, IT IS TRUE!!

IT IS THE SAME SCENERIO. I WAS HIT ON THE HEAD IN AN CAR ACCIDENT. I GOT AN EXCRUIATING HEADACHE THAT STAYED WITH ME ENOUGH TO MAKE ME GO TO A DOC.
I DO HAVE VERY LOW CORTISOL, ACTH AND PROLACTIN LEVELS WHICH HAS BROUGHT ME TO A DIAGNOSIS OF "ADDISON'S DISEASE", BY AN ENDOCRINOLOGIST...BUT WAS IT BECAUSE I HAD THE HEAD INJURY OR NOT? IT MAKES A PERSON WONDER WHAT IS THE ROOT CAUSE OF SOMETHING SO DEBILITATING...AND MISERABLE.
 SO, THE HEAD INJURY COULD HAVE BEEN THE CULPRIT ALL ALONG! IT WAS RIGHT THERE, UNDER THEIR NOSES AND THEY DIDN'T EVEN CONSIDER IT!:P
MY HEAD HAS PAIN...ALL THE TIME THAT CAN HIT HARD...AND IT CAN FEEL LIKE THE WORST KIND OF HEADACHE OR PAIN THAT U HAVE EVER FELT, IN UR LIFE AND THAT IS A SCARY SCARY SCENERIO.
SO, I HAVE KNOWN FOR QUIT SOME TIME THAT THERE WAS SOMETHING SERIOUS GOING ON, BUT IT IS HARD TO GET ANYONE TO EVER REALLY LISTEN TO U SOMETIME OR MAYBE EVEN, TAKE U SERIOUSLY...THAT SOMETHING IS SO WRONG THAT U CAN'T STAND, SIT OR WALK. WHY DOES IT HAVE TO BE SO HARD TO TRY TO RELATE THAT TO SOMEONE....VERY HARD, IF U LOOK OKAY ON THE OUTSIDE. IT IS JUST HARD FOR SOME TO UNDERSTAND, WHEN U LOOK HEALTHY AND CAN SMILE...THROUGH THE PAIN...THAT IS, THEY THINK UR ALRIGHT.:P  I THINK, A PERSON HAS TO BE IN UR SHOES OR TAKING CARE OF SOMEONE THAT HAS THE SAME SYMPTOMS, TO TRULY UNDERSTAND THE EXTENSITY OF IT ALL!
WHEN UR BODY WREATHS AROUND LIKE IT HAS BEEN RUN OVER, WHIPPED, BEAT AND UTTERLY EXHAUSTED AND HAS SO MUCH PAIN....U KNOW, THERE IS SOMETHING VERY WRONG AND THE ONLY THING U WANT IS ANSWERS!
I HAVE HAD THIS DISABLING, CRIPPLING...NIGHTMARISH PAIN FOR YEARS, BUT DOCS HAVE BEEN PRETTY MUCH CLUELESS TO WHAT IT WAS, UNTIL NOW...AND I MUST SAY THAT I FINALLY WAS FOUND TO HAVE ADDISON'S, BUT IT TOOK 6 YRS TO FIND THAT. I KNOW, I AM GREATFUL THAT THEY FINALLY DID, BUT NOW, THEY ARE SAYING THAT THERE IS SOMETHING ELSE THAT IS CAUSING THE EXTREME NUMBNESS IN MY EXTREMITIES...THAT IT IS NOT JUST THE ADDISON'S THAT IS CAUSING THAT.
AT THE BEGINNING OF ALL OF THIS...I THINK, THEY WERE BEGINNING TO WONDER IF....IT WAS ALL IN MY HEAD, BUT NOW THAT IT IS SURFACING AND THEY ARE FINDING INCLUSIVE TEST RESULTS*(LYME)...AND BRANCHING OUT TO SEE THAT I DO HAVE A MUSCULAR ISSUE. U KNOW, IF U HAVE A MUSCULAR ISSUE, U MOST LIKELY HAVE A NERVE ISSUE. IT IS BECAUSE THE MUSCLES AND NERVES WORK TOGETHER FOR THE MANY DIFFERENT FUNCTIONS THAT WE NEED.

I HAVE DONE BECOME SO WEIRY, IN THE PAST 6 YRS...THAT MY MIND IS FLABBERGASTED FROM HAVING TO DEAL WITH IT...ALL OF IT, FOR SO LONG. IT FEELS LIKE MY BRAIN IS SKIPPING AROUND LIKE A NEEDLE ON A RECORD!!!:P
THEY HAVE ME TAKING SOME STRONG MEDICATION.
ONE IS AN ANTISIZURE MEDICATION, LIKE PEOPLE TAKE WITH EPILEPSY. I TAKE A STRONG PAIN MEDICATION CALLED FENTANYL, A BREAKTHROUGH PAIN MEDICATION...THAT IS FOR THE PAIN THAT HITS IN BETWEEN THE OTHER PAIN MEDICATION,  MIGRAINE MEDICATION, ULCER MED, ALLERGY MEDICATION....DARN, WHEN DOES IT END? IT WON'T, AS LONG AS I LET THEM GUINEA PIG ME.
I MEAN, I FEEL LIKE ELVIS PRESLEY HERE, BECAUSE I HAVE TO TAKE SOMETHING TO SLEEP, SOMETHING TO FOR THE PAIN, SOMETHING TO RELAX MY MUSCLES AND THE INFLAMMATION ISSUES THAT I HAVE, WITH A DIURETIC.. ~sigh~...It is tough!...AND I HATE IT. I HAVE TO LOG EVERYTHING DOWN, FOR MY MEMORY SAKE. I MAKE SURE THAT I TAKE IT CORRECTLY AND I MUST SAY THAT I AM WHAT THEY CALL A PAIN CHASER. I WON'T TAKE ANYTHING  HARDLY, UNTIL THE PAIN HITS ME TO WHERE I CAN HARDLY BEAR IT...SO, I PROBABLY SHOULD TAKE MORE, BUT I HATE MEDICINES....I DON'T HAVE A CHOICE THOUGH...I AM IN SO MUCH PAIN.:((
Unfortunately, I have to take the medication that was prescribed-- like the antiseizure medication for the nerve pain or either, go utterly insane from the pain! It suppose to block the signals in the brain, to stop u from feeling the pain...no...yeah, not really, but I guess it must help me some, but is probably the cause for the skipping record feeling, since it is anti-seizuire medication and have cut the dosage that they have prescribed, down to half. So, it would be a good assumption to make...that that one...will  be gone soon and out.:))  YEAH!!
The Fentanyl Patch, I wear for around the clock pain coverage. IT is the one that is the most isidious of them all and I hate to deal with it. IT can KILL u by itself,  if u get to hot or set out in the Sun...but, I am very careful and don't have a choice in the matter right now, because the pain is so intense and around the clock PAIN.  I have to remember to make sure that I don't go over 3 days or my PAIN will remind me that IT is DUE. IT is Not fun...and I have to write everything down, so I won't or don't forget, because my memory with the Addison's, is bad. U forget soo much...it almost feels like everything, almost. (short term mostly=, but some long-term can be afftected, as well) I have to know the time and date that it was applied or my memory will not remember!
Now, for that breakthrough pain. The key there is to catch the pain in between. Yeah, it is most definitely monotinous..but, I have no choice right now and have to do what I can to survive this nightmare...or until, they can figure out, IF the head injury started all of this and treat THAT!
Some of medications that have been prescribed...I just threw away like the anti-depressants or the muscle relaxers.(can't take-allergic). As a matter of fact, I only take the bare minimum to relieve my pain and most of the time, it just barely phases it. I just am stronger, than most people give me credit for.
To be honest, I don't like ANY medication or even believe in them for long term, because I think, it might be alright for a short-termed incident, but when it comes to solving a complex problem, I think NATURAL is always best. I believe...all it is doing is making me TOXIC. I just want to do things the natural way and NOT have to take anything, ever again, IF possible.  I am trying to find ways of incorporating good food, in my diet always now and having to take the Hydrocortisone(Cortisol), to get my life...back up to par.

DO U KNOW, WHAT THE HARDEST PART OF ALL OF THIS IS? IT IS...THE PEOPLE AROUND ME THAT SEEM AGGRIVATED BY IT OR ARE TIRED OF HEARING IT, BUT I KNOW, THEY JUST CAN'T FEEL HOW I FEEL...INSIDE. SOMETIMES, THEY USE THE WORD DRAMATIC. I WILL GIVE THEM DRAMATIC!
I AM NOT A DRAMATIC PERSON. I AM REALISTIC, CONSERVATIVE AND A CHRISTIAN(most of all)...AND WOULD NEVER PUT ON. NOO, I ONLY WISH I WAS ACTING. No, I AM THE SAME TODAY, AS I WILL BE TOMORROW.:))...REAL. 
 "DRAMATIC". shoot...AND THAT AIN'T THE WORD FOR IT.  WHEN,
ALL OF THIS TIME, I HAVE BEEN DESPERATELY SEEKING HELP TO GET BACK TO ME. I AM SURE I MIGHT SEEM TO BE SOMEWHAT DRAMATIC, BUT A PERSON THAT FELT THE PAIN THAT I HAVE FELT...WOULD SEEM DRAMATIC TOO.:P

I HAVE BEEN TO SOME DOCS THAT WERE SO RUDE. THEY HAVE ACTUALLY MADE COMMENTS TO BASICALLY SAY...U R FULL OF IT. REALLY, THEY HAVE SAID THINGS LIKE, "I DON'T THINK U HAVE LEPROSY, BUT U MIGHT HAVE A PROSTATE PROBLEM". YEAH, NOW WOULD U ACTUALLY THINK THAT A NEUROLOGIST WOULD SAID THAT TO ME?..THIS NL DID...AND IT WAS THE LAST TIME THAT I SAW HIM...TOO.:P
IT IS UTTERLY RIDICULAS THAT A PERSON HAS TO SUFFER, IN ITSELF...BESIDES TAKING INSULTS, FROM OTHERS THAT JUST DON'T WANT OR CARE TO UNDERSTAND...WHAT THE PROBLEM IS!
I AM GREATFUL TO THOSE WHO HAVE STOOD BESIDE ME, DURING ALL OF THE HARDSHIPS. ONE THING, FOR SURE...I DEFINITELY KNOW, WHO CARES FOR ME AND WHO DON'T.

U CAN SEE, BY THE PICTURE THAT I HAD SO MUCH GOING ON. SOME PEOPLE, EVEN THOUGHT I HAD A DRUG PROBLEM...I AM SURE, BY THE LOOKS OF MY FACE, BUT NO...THAT WAS NOT THE ISSUE. IT WAS A HORMONAL ISSUE. AT FIRST, WHEN I WENT TO SEE THE DERMATOLOGIST DOC...I THOUGHT THAT SHE WAS JOKING, WHEN SHE SAID THAT IT WAS MY HORMONES THAT WERE CAUSING ALL OF THE BREAKOUT. SHE ACTUALLY WAS CORRECT AND I SEE NOW, THAT SHE DID MEAN IT. NOW, I SEE THAT IT IS TRUE, BECAUSE WITH ADDISON'S DIESEASE...IT IS ALL @ THE HORMONES.
IT HAS CAUSED ALL OF THIS ON MY FACE. 
THANK GOD, IT HAS GONE AWAY.:))

THE ISSUE...IS TO FIND THE ROOT OF ANY PROBLEM AND THEN, TRY TO SOLVE IT...NOT TO COVER IT WITH MEDICINE, FOR ALL THAT WILL DO IS PUT OFF THE ENEVITABLE. 
I WISH, I COULD FLUSH ALL THE MEDICATION THAT HAS BEEN PRESCRIBED TO ME, DOWN THE TOILET. I ABHORE MEDICINE.
THE ONLY THING THAT I WANT IN MY LIFE, TO CHANGE...IS TO BE ABLE TO WAKE UP AND FEEL REFRESHED MY MY DREAMFUL SLUMBER AND TO START MY DAY...WITH JUST MY COFFEE. I DO NOT EVEN WANT TO HAVE TO TAKE A MOTRIN FOR A HEADACHE. MAYBE SOMEDAY SOON.:))
WHEN, I HIT MY HEAD THAT NIGHT...EVERYTHING STARTED.  BUT IT HAS BEEN THAT WAY FOR 6 OR MORE YEARS...NOW AND THAT IS A LONG TIME TO BE TREATED FOR THE WRONG PROBLEM AND TO WANT TO HAVE MY LIFE BACK..AGAIN.

I HAVE BEEN TREATED FOR FIBROMYALGIA, MYOFASCIAL PAIN SYNDROME, DISK HERNIATIONS AND MIGRAINE, ETC. AND ALL ALONG IT HAS BEEN THE HEAD INJURY THAT HAS CAUSED ALL OF IT!?!  IS IT WHAT STARTED IT??? 
NOW, I HAVE BEEN DIAGNOSED WITH ADDISON'S, A ADRENAL INSUFFICIENCY.  MY CORTISOL, ACTH AND PROLACTIN LEVELS ARE VERY LOW.

COULD HAVING THIS HEAD INJURY, HAVE STARTED THE BALL TO ROLLING AND ME TO WIND UP IN THE SHAPE THAT I AM IN? I GUESS...IT SURE SEEMS THAT WAY. IF, U PUT TWO AND TWO TOGETHER...U GET THIS ANSWER...EVERYTIME.:P
(I STILL HURT AND CAN'T BE TOUCHED, ON THE TOP OF MY HEAD, WHERE I WAS HIT IN THE ACCIDENT)..hmmmm?






Ricochet of the brain within the skull may account for the coup-contrecoup phenomenon.[59]







ALL I WANT IS TO BE HAPPY LIKE EVERYONE ELSE AND NOT FEEL SO ISOLATED.  IT IS HARD, WHEN UR WHOLE LIFE, U HAVE BEEN ACTIVE AND A WORKER...TO JUST BEING STUCK AND NOT BEING ABLE TO DO...ABSOLUTELY NOTHING! I FEEL, I HAVE BEEN HIDDEN AWAY, IN A ROOM...SUFFERING TO NO END...AND FEEL-ing HOPELESS, AT TIMES, BUT I AM GREATFUL FOR ONE THING THAT CAME OUT OF ALL OF THIS. I FOUND GOD...AND HE HUMBLED ME. HE MADE ME TO SEE...THAT HIS GIFT IS ETERNAL...EVERLASTING AND HIS LOVE IS REAL...HE IS REAL.:D 
I AM SO GREATFUL THAT I AM STILL HERE. I KNOW, I COULD VERY WELL BE GONE, BUT THANKS...BE TO GOD, I AM STILL A BREATHIN' AND A HOPING FOR A BETTER DAY.:))
I WANT TO BE LIKE I WAS IN THE PICTURE AGAIN...ALIVE AND FULL OF LIFE. EVERYONE THAT KNOWS ME, KNOWS I AM A LAZY PERSON...NEVER HAVE BEEN, NEVER WILL BE...BUT, WHEN U R THRUST INTO SOLIDARITY AND PAIN...THEN, U LEARN TO COPE, U LEARN TO USE THAT PATIENCE THAT GOD GAVE U AND UR GREATFUL TO UR FRIENDS THAT U CAN LEAN ON TO GET U THROUGH WITH UNDERSTANDING...U LEARN, GOD IS EVERYTHING...AND THE WORLDLY THINGS ARE NOTHING, THEY DON'T MATTER.:))


I AM NOT GOING TO LIE AND SAY THAT THIS HAS BEEN AN EASY TREK...NO, IT HAS BEEN SO HARD, BUT GOD HAS GIVEN ME THE ANSWER TO MY PRAYER. I ASKED HIM, IF HE WOULD JUST MAKE WHATEVER I HAD CURRABLE...AND THIS IS THE ANSWER. IT IS JUST GOING TO TAKE SOME TIME, TO GET ME BACK TO ME, BUT THAT IS FINE...I HAVE LEARNED TO DEAL WITH IT.:D
JUST BECAUSE, I CAN'T GET ANYONE TO UNDERSTAND THE GRIEF THAT GOES WITH ALL THAT I HAVE BEEN THROUGH AND THE TIME THAT I'VE LOST, FROM THIS INSCIDUOUS UNDETECTABLE PROBLEM THAT HAS GONE ON, FOR WAY TOOO LONG, DOESN'T MEAN THAT I WON'T MAKE IT. I WILL.."LORD WILLING"..I WILL...<3 


ALL THAT A PERSON CAN DO IS TRY...AND ONE WAY THAT HELPS, IS TO HAVE THE LORD ON UR SIDE AND GOOD CHRISTIAN FRIENDS.:D
HE WILL FIGHT FOR U AND MAKE SURE THAT UR LIFE IS ALL THAT IT CAN BE.:))))<3 Karen    

2 comments:

Anonymous said...

Outstanding content and definitely aids with becoming familiar with the issue better.
My hubby and I were sent here mainly because this article had been tweeted by a guy I was following and i am excited I made it here. [url=http://en.netlog.com/MableAppleedrigmoate/blog/blogid=7567998]Saving Money with Online Printable Swiffer coupons[/url]
[url=http://michelmccall511.insanejournal.com/2276.html]Loving It Swiffer Wet Jet coupons On The Web Currently[/url]

I merely have got to state you help to make a number of fine facts and probably will post a number of concepts to add on just after a day or two.

Anonymous said...

hi - re your " arco post" sunday morning send me an email and i will definatley get back onto you try this link see if there the same
kind regards
jamie dentims