"MY MOTTO"

"MY MOTTO"
LIFE...AND THE THINGS IT BRINGS

Friday, July 29, 2011

THIS IS A QUESTION THAT I POSTED ON THE NET AND WILL POST THE RESULTS HERE, WHEN RECEIVED.

Your Question

After an ACD & F spinal diskectomy I have progressively added so many symptoms of numbness,weakness and pain.?

I had the surgery on my neck C5-C6, in '06 and pain started in my right bi-cep with aching pain that burned too.The pain kept me from using that arm,so I went in and had a series of three nerve blocks, they called them ESI's.The first two were given in my Cervical, but the last one I had was in the Thoracic and that one something was hit, in my back and I jumped on the table like I was electrocuted.Ever since that day,I have been numb in my hands and feet.I am progressing though and it is moving to every part of my body.
I am mostly confined to laying back for that relieves the pressure that I feel, but can walk for short periods, but have to make myself do it. I am only 45,always have been active my whole life and it is hard to be stuck in bed, where most people think it is wonderful, Yeah, for short periods, but not made to just stay there because your legs hurt(under the knees mostly)to where my feet are sore, numb and painful.I hurt in my back(have been dx with disc problems at T8-T11,but one NL told me that it was out of his area of expertise and didn't really know what that was.He just put disk herniation with hypertrophy at T10-T11.I just know that I can't twist around to reach or I will yelp with a catch and it feels so tight there.I did feel a pulsating area in my back at one time.IT felt like how a boo-boo throbs after you have sliced your finger open with a tremor in it. STRANGE.
My neck always hurts like a vice-grip has it telling me how I can turn.I do have good movement with range, but shoulders are sore and have been told that my right is bone on bone.I don't know if that is true,but it grinds and pops out of place a lot. I have to admit that I know this is a lot, but IT is ALL real.I must say that I have always felt it was from my surgery because I was told I had a screw on top of a nerve, but NS says that everything looks fine to him, but I don't feel fine.
I have even been having episodes of heart racing, hard to breath issues and wonder if the place where I was hit maybe has grown into the sternum area because where the pulsating place was that hurts all the way through and I can't even touch my sternum sometimes. My mom thinks it is my hernia. IT could be, but it feels like a band that tightens up around my waist.It is over 35 inches. I think it is 36 or 37 and I wonder if that could be a prominant symptom.
Here are all of the symptoms that I have been experiencing that start with the worse symptoms first: Numbness that seems to have enveloped my entire left side now and it stays that way(my face feels like Novacane has been shot in my cheeks and jawbone),pain underneath my knees is always tender and achy,weakness that makes me feel like my arm/hand is heavy,burning feeling of skin that can be in sheets or patches, achiness-anywhere, pin/needles in hands/feet, tremors/spasms-anywhere,have pains on my temple area that hit hard sometimes and have seen lights,at one time,eyes do go completely blurry really fast that even my glasses won't help, fatigue hits because I don't sleep but 4-5 hrs.a night,abdomen feeling swollen,whole left side paralysis of my arms/legs for a period of time and my body has these little tiny pimple-like places that I think are definitely connected,they are so little in places, but a little round ball with come out if pressed, some come out like a string.I have had places come up that are like dry patches that just peel like a sunburn would, but it isn't a sunburn.My eyes also feel dry and my sinus are really bad,they always have some kind of film or white like film that you can't blow out(gross),but it is clear with no apparent color, but clear or white.
I am at my wits end with this stuff and just want some kind of clue to what others think this could be. I have had surgery on my left jaw in the ear area to get a bone spur removed and that is what was removed from my neck*(ruptured petrusion) and I did have Endometriosis that I heard was an unbias disease. All I do know is that my brain hurts,my neck hurts, my back hurts and legs. I can't use my arms and legs to reach, pull,push or HOLD for that matter, I have to really concentrate to keep it in my hand and my left arm/hand has a shake to it whether or not I use it sometimes, but not always. I have left you with more than enough info and sorry it has so much to go through, but wanted to be as thorough as I could. I will be happy with any info that you can give me on what you can come up with that is. I know I am a complicated case and a MYSTERY DX I must add.Thank you so very much for your help and consideration for my misery.:)))<3 Karen,stuck in Arkansas with not much help around .
PS.Could it be from the surgery?Could it be from where I was hit in the back with a nerve block? or some kind of Autoimmune disorder because of tick bite I got 3yrs. ago? Thanks again.:)))
 
THIS SHOWS HOW MY BACK LOOKS CURVED  IN THE MID-THORACIC AND COMPRESSED AT THE "DOWENGER'S HUMP" AREA. IT IS SO PAINFUL IN THOSE AREAS THAT I CAN'T EVEN TOUCH IT SOMETIMES.
 
 
IT REALLY LOOKS THICK AT THE BACK OF MY HEAD AND YOU CAN SEE THE VENOUS ANOMALLY (NS CALLED IT AN "AVM"). IT JUST HURTS SO MUCH AND ESPECIALLY AROUND WHERE MY SURGERY IS LOCATED AT THE FRONT OF MY NECK. I CAN'T EVEN TOUCH MY NECK SOMETIMES BECAUSE OF THE SENSITIVITY THERE.
HECK, I HURT ALL OVER, I JUST DON'T KNOW WHERE IT IS COMING FROM...THAT IS THE PROBLEM.
NOW, I HAVE BECOME MORE RIGID WHEN I WAKE UP...STIFF. I CAN'T EVEN TURN OR TWIST MY BACK AT ALL OR I WILL YELP OUT IN PAIN FROM JUST TURNING A LITTLE BIT. THE DOCS DO SEE SOMETHING IN MY THORACIC AND ONE OF THEM SAID THAT "IT WAS OUT OF HIS AREA OF EXPERTISE" AND DIDN'T KNOW WHAT IT WAS. WELL, I BELIEVE I AM GOING TO GET SOMEWHERE WITH THIS NEW DOC,THIS TIME.."LORD WILING".:)))
 
I JUST THOUGHT, I WOULD GIVE AN UPDATE @ HOW THINGS ARE GOING. I AM SEEING A NEW NEUROLOGIST NOW AND PRAY THAT HE IS AS GOOD AS HE HAS BEEN TOLD HE WAS. I FEEL THAT HE IS A GOOD DOC BECAUSE HE IS SO THOROUGH AND I LIKE THAT. I JUST PRAY THAT HE CAN FIGURE OUT WHAT THE HECK HAS ME BEING IN SO MUCH PAIN.
THE NUMBNESS HOWEVER IS TAKING OVER AND IT SCARES ME A LITTLE. THERE HAS BEEN TIMES TO WHERE I CAN'T EVEN MOVE MY LEFT SIDE...IT JUST LAYS THERE AND FEELS LIKE A 40LB. WEIGHT IS LAYING ON IT.
I AM JIST WORRIED THAT IT COULD LEAD TO AN EVEN WORSE CONDITION, IF THIS IS LEFT UNCARED FOR. I DON'T WANT TO BECOME TO WHERE I CAN'T WALK AROUND, BUT I AM DEFINITELY FIGHTING THAT ONE...HECK, ALL OF THESE SYMPTOMS ARE ROUGH, BUT I AM STILL GOING AND I THANK THE LORD FOR THAT. HE COMFORTS ME SO MUCH AND I KNOW HE IS THERE FOR ME...ALWAYS.:))<3 Karen
 
 

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