"MY MOTTO"

"MY MOTTO"
LIFE...AND THE THINGS IT BRINGS

Friday, November 4, 2011

WE NEED TO BE TAKEN SERIOUSLY B4 IT TURNS OUT TOO LATE TO CHANGE ANYTHING

THIS IS ANOTHER  EXAMPLE OF A PERSON HAVING ISSUES WITH PAIN AND WAS MADE TO WAIT TOO LONG B4 THEY FOUND WHAT WAS CAUSING THE PAIN. NOW, HE HAS TO LIVE WITH THE DEBILITATING PAIN EACH AND EVERY DAY. THIS PERSON, ALSO HAD A CERVICAL SURGERY (like I did)  AND HE WOUND UP WITH COMPLICATIONS FOLLOWING.

IT MAKES A PERSON WONDER JUST WHY THEY WON'T LOOK BEHIND MY TITANIUM PLATES. THAT IS ALL I WANT DONE. IF YOU CAN'T SEE BEHIND TITANIUM PLATES  FROM A PREVIOUS NECK SURGERY AND HAVE BEEN SUFFERING FOR 6 YRS. OR MORE AND CAN'T RECEIVE AN ANSWER TO WHY THE SUFFERING HAS TO CONTINUE. WHEN, IT IS VERY POSSIBLE TO REMOVE THE PLATES SO THAT THE NEUROSURGEN CAN GET A COMPLETE VIEW OF THE AREA AND MAKE SURE THAT THE PROBLEM ISN'T COMING FROM THIS AREA, IN THE FIRST PLACE. I HAVE TO  RULE  OUT ANY CONNECTION TO THE POSSIBLE CAUSE OF THIS DEBILITATING AND EXCRUCIATING PAIN THAT THE I EXPERIENCE EVERYDAY.
A PATIENT SHOULDN'T HAVE TO GO THROUGH ANY AMOUNT OF PAIN...ON A DAILY BASIS, IF THEY CAN FIND THE CULPRIT. I REALLY THINK, THE PLATES SHOULD BE REMOVED AND THE AREA FULLY VIEWED, BECAUSE THERE HAS YET TO BE A SOLUTION TO THIS PROBLEM. WHY DOES IT HURT TO JUST LOOK? MAYBE, THEY CAN PUT SOME KIND OF CAMERA IN AND TAKE A PEEK OR SOMETHING. ANYTHING, BUT NOTHING!!!  I DON'T UNDERSTAND WHY THEY WOULD JUST SUBJECT ME TO LIVE IN THIS MISERY THE REST OF MY LIFE...THE WAY I AM LIVING, WHEN TO ME, THIS IS NOT LIVING. ONE MORE THING, I AM NOT STRETCHING THIS. THIS PAIN IS REAL AND HORRYFYING, AT TIMES.

I FEEL THAT I HAVE BEEN BASICALLY BEGGING TO GET THESE PLATES REMOVED, SO THAT A FULL COMPREHENSIVE VIEW OF THE POSSIBLE AREA THAT IS APPARANTLY HAVING MORE PROBLEMS THAT I CAN STAND...CAN BE VIEWED AND THEN THEY CAN RULE IT OUT, IF THERE IS NO PROBLEM BEHIND THEM, BUT DON'T ASSUME THAT THERE IS NOTHING IN THERE. I FEEL IT AND I KNOW THAT SOMETHING IS WRONG SOMEWHERE. IS THAT ASKING TOO MUCH?...NO. THEY CAN'T SEE BEHIND THEM AND I AM DYING HERE. I MUST SAY, THAT IS WHAT IT FEELS LIKE ANYWAY. AT LEAST, I WISH THEY WOULD LOOK, SO I CAN MOVE ON TO FIND THE ANSWER, INSTEAD OF JUST LAYING HERE WITHERING AWAY. NO, I MUST AND CAN FIND THE ANSWER...SOMEHOW.


MY BODY IS TIRED OF BEING IN PAIN. WHY CAN'T SOMEONE SEE THAT? WHY CAN'T SOMEONE MAKE THEM LOOK FURTHER...DEEPER TO FIND THE PROBLEM, INSTEAD OF COVERING IT UP OR TRYING TO MASK MY SYMPTOMS BY MEDICATING ME. WELL, MY SYMPTOMS ARE BECOMING A VERY BIG PROBLEM. THEY ARE TAKING MY LIFE AWAY FROM ME AND I AM TIRED NOW AND I HAVE TO FIGHT BACK OR I WILL BE IN MY GRAVE, AT AN EARLY AGE. I KNOW THAT DOES SOUND MORBID, BUT IT IS TRUE. IF A PERSON DOESN'T FIGHT TO LIVE...THEY WON'T MAKE IT.

THIS HAS NEEDED TO BE ATTENDED TO FOR A LONG TIME NOW. NOW, I AM IRATE AND ANGRY BECAUSE I HAVE BEEN LEFT HERE TO FEND FOR MYSELF...BASICALLY. I AM ONE OF THE LUCKY ONES THAT DOES HAVE SOMEONE TO AT LEAST TEND TO ME AND HELP ME GET THROUGH MY DAYS AND I AM SO GREATFUL THAT I DO, BUT WHAT @ THE PEOPLE WHO DON'T HAVE ANYONE TO HELP THEM? THEY ARE OUT THERE.:( 

I WANT TO LIVE AGAIN AND ALL I HAVE IS THIS COMPUTER TO SAY WHAT IT IS THAT I NEED TO SAY, BECAUSE IT IS VERY EVIDENT THAT GOING TO DOCTORS ASKING THEM TO HELP FIND WHAT IT IS THAT IS KILLING ME...GETTING VERY OLD AND I AM GETTING NO WHERE, IN THE PROCESS.
 AFTER DEALING WITH A CERVICAL SURGERY, I SHOULD AT LEAST HAVE THE RIGHT TO KNOW, IF THERE IS SOMETHING WRONG IN THERE AND NOT BE JUST LEFT IN THE DARK @ IT.




THIS PERSON BELOW, NAMED "JS", IS SUFFERING AND HE, LIKE ME, HAD A CERVICAL DISKECTOMY, BUT IT WAS TOO LATE FOR HIM TO EVER REGAIN HIS LIFE BACK, LIKE IT ONCE WAS..AGAIN.
IT JUST TOOK TOO LONG TO GET ANYONE TO LISTEN TO HIM AND I KNOW HOW HE FEELS. THIS IS ONE OF THE THINGS THAT I AM AFRAID OF, IT TAKING TOO LONG TO FIND THE CULPRIT. 
THIS IS JUST AN EXAMPLE OF WHAT CAN HAPPEN AND THIS COULD HAVE BEEN AVOIDED, IF ONLY A DOCTOR WOULD HAVE SEEN THE SIGNS ,B4 IT WAS TOO LATE. HE DIDN'T GET HIS ANSWER FAST ENOUGH AND BY NOT FINDING WHAT IT WAS THAT WAS SO IMPORTANT, HE WOUND UP HAVING PRESSURE ON HIS SPINAL CORD,4 TOO LONG.  
IT, ALL CAME DOWN TO THE DOCTOR, NOT TRYING HARD ENOUGH TO GET TO THE BOTTOM OF IT. THIS PROBABLY COULD HAVE BEEN AVOIDED, IF ONLY THE PATIENT, WOULD HAVE BEEN LISTENED TO, IN THE FIRST PLACE .
YEAH, WE DO KNOW OUR BODIES.

JS in SD
This paper study and others like it will be used by insurance companies to justify not paying for needed surgeries or for delaying them while they try other options, causing more damage. I have had surgeries on my cervical spine and was left permanently disabled due to delays before the last surgery. I had degenerative disk disease in my cervical spine. An initial surgery to fuse three vertebrae were initially successful at getting me back on my feet. I was back at work and doing well in a couple of weeks. I then had another disk bulge that started crushing my spine. I was getting severe shocks down my entire body and was starting to have difficulty walking. The HMO refused to authorize the surgery until they tried other options, which even the doctor knew would not help in my case. They delayed the surgery while they tried epidural injections, physical therapy, etc. By the time they authorized the surgery, the pressure on my spinal cord had cut off the blood flow for too long. The damage to my spinal cord was permanent and I am in constant pain that medication barely touches. It keeps it to the point that I do not have to be permanently hospitalized, but that is about it. If the surgery had not been delayed by the HMO, I would not be in the condition I am in and would likely be back working and enjoying life, instead of permanently disabled. I am afraid that paper studies like this will result in more people unnecessarily ending up in the same situation I am in. It will be used to justify delaying or denying needed surgeries, even when it is clear that the alternatives will not help the particular case.
The success of back surgeries is determined by a couple of factors. The most obvious is the skill of the surgeon. A good surgeon knows when it makes sense to operate and when it does not. They also know how to minimize or eliminate secondary problems resulting from the surgery itself. Another factor is how well the person that had the surgery follows the doctors instructions following the surgery. This includes not trying to push things too quickly as well as doing the physical therapy that is needed to recover. A final factor is, unfortunately, just luck. Some people will come back well and others will not. Know one really knows why some people respond better than others.


I DO AGREE THAT BY THE TIME THE DOCTORS DO GET A CLUE, THEN IT COULD BE TOO LATE. I CAN'T STAND TO HARDLY BRUSH MY OWN TEETH...I CRY. THERE IS SOMETHING VERY VERY WRONG HERE, BUT I CAN'T SEEM TO GET ANYWHERE. I HAVE BEEN TO DOCTORS, BUT MUST SAY THAT THEY DON'T TAKE YOU THAT SERIOUSLY. NO, THEY THINK YOU ARE FULL OF HOT AIR AND JUST WANT ATTENTION. "NOT"..NO, UNFORTUNATELY, WHAT I HAVE IS REAL. IT IS VERY PAINFUL AND I TRY...I REALLY DO TRY TO GET THROUGH EACH DAY WITH A SMILE AND MOST OF THE TIME...I HAVE TO GRIN AND BEAR IT AND HAVE TO ADMIT THAT I AM SCARED.
I DO KNOW THAT I LIVE IN A SMALL TOWN AND THAT MAKES IT HARD AND I HAVE TO TRAVEL. I DON'T LIVE WHERE IS SOMEONE WHO COULD FIX ME. I HAVE TO GO TO THEM AND DO YOU KNOW WHAT THAT FEELS LIKE, FOR SOMEONE THAT EVERY LITTLE BUMP IN THE ROAD, IS LIKE SOMEONE ACTUALLY HURTING YOU?

ALL I WANT IS TO BE TAKEN SERIOUSLY AND FIND THAT DOCTOR WHO IS GOING TO PUT ME BACK TOGETHER AGAIN. AFTER THAT SURGERY OF THE ACD & F SPINAL DISKECTOMY OF MY C5-C6, MY LIFE HAS DONE NOTHING, BUT GO STEADILY DOWNHILL. SOMETHING IS WRONG IN THERE AND IF THEY CAN'T SEE BEHIND MY TITANIUM PLATES AND I HAVE BEEN CHECKED EVERYWHERE ELSE IN MY BODY, I THINK. THEN, I THINK IT SHOULD BE LOOKED INTO AND DONE. DON'T YOU?
I HAVE GOT TO WHERE I CAN'T DO ANYTHING AND LIVE IN THE BED..80-90% OF THE TIME. I HAVE BEEN DIAGNOSED WITH DEGENERATIVE DISC DISEASE, SPONDYLOSIS AND SPINAL STENOSIS....WHY? WHERE DID IT COME FROM, WHEN THEY TOLD ME THAT ALL I HAD AT THE TIME OF SURGERY WAS A RUPTURED PETRUSION?  THEY HAVE EVEN DOCUMENTED THAT I HAVE A T3-T4 COMPRESSED FRACTURE...."WHAT?" WHAT IS GOING ON IN MY BODY? I WANT TO FIND OUT NOW. I AM TIRED OF LIVING LIKE THIS!!!
GOD BLESS ALWAYS.:)))<3 Karen

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